Quiet Celebration

In anticipation of Cooper's 3rd Birthday and the 1st anniversary of earning his wings, I was fortunate to be granted a few weeks off work. We headed for the solace of the sand, the waves, the breeze, and the fish. David and I spent Cooper's birthday in Cabo, and went on a snorkeling adventure. We visited the place where the Sea of Cortez meets the Pacific Ocean, saw manta rays, a guitar shark, dolphins, held a few starfish and swam with hundreds of fluorescent fish. It feels weird to call it a "celebration" without Cooper here to actually be turning 3. We wrote Cooper a birthday message in the sand which quickly washed away by the gianormous crashing waves, as if the ocean were the messenger. Our adventure seemed more reflective of the things reminding us of our little boy, a quiet celebration, and that felt good.





Today has been a year, one whole year, since Cooper earned his angel wings. It was hard to sleep last night just thinking of how different things were on this day, down to the hours. Images of what we were doing the night before he died drift in and out of my mind; David, Cooper, and I had all taken up camp in our living room sleeping together in shifts on the hide-a-bed because it was easier to access the oxygen concentrator and the kitchen for mixing meds. It's still all very surreal. We choose to focus the good times, and the happy moments, so today is especially hard because it's the day our light went out.
It will be a hard day, but I know we will get through it. These are the memories that hurt, yet they are the memories that compel us to live each day to the fullest, for Cooper.

A full moon every night. Goodnight Moon, Goodnight Cooper

Peace & Wonder

Approaching One Year

It is only the beginning of June, and I'm sure these next two months will bring out the emotions in all of us. May was rough enough on it's own and I must say that I was glad to see the month come to an end. I expected that the one year anniversaries would be hard, but I didn't expect to feel knocked off my feet. It's not like we didn't know it was coming, yet the lull wasn't long enough between waves to stand back up. Every week in May revealed a giant waving red flag reminding us that Cooper was gone.

May is a pretty rough month for us. It has been two years since Cooper was diagnosed with GM1 and as much as I'd like to, I will never forget that day. Last year we held the first ever Cooper's Quest event and it was the only one Cooper would be alive for. One year ago, on Memorial Day, was the last time we heard Cooper laugh out loud. I think that because laughter as a first was so significant, it makes the last time much more poignant. It's one of my most favorite and coveted memories, to think Cooper so giggly over silliest sounds and noises. He would laugh so hard pausing only long enough for you to do it again and again creating a never ending cycle of laughter.

Oh month of May
You burn, you sting, you left a scar.  

Diagnosis Day lay stagnant,
within these walls of May.  

Two Mother's Days I had with you,
and now there are no more.  

A founding quest amongst these Days,
bittersweet memories.  

Memorial Day on summer breeze, a smile, a laugh, the last of these. 

All these memories are still so close to the surface and I find myself still trying to obtain that elusive {balance}. A way to grieve and the space to feel sad while relishing the joy he brought to our lives. I still try to live life to the fullest even in his absence, one of the top lessons learned from my little one. Most days the good memories take over and I find myself remembering laughs, and hugs, a family surrounded in love.

Memory Quilt

We received a beautiful memory quilt on Saturday from Over the Top Quilting and the timing could not have been more perfect! We will be moving the week following Mother's Day and I have been really apprehensive about packing up Cooper's room.





It will feel so strange to live in a new place that Cooper never knew, but it doesn't feel right to put his room back together in a new place either. There were certain pieces of clothing and bedding that were just so Cooper and I couldn't imagine passing them on to someone else. Taking those pieces and turning them into a quilt has kind of created an adult size security blanket. I can't stop touching the blocks or running my fingers over all of the loopty-loos! The whimsical stitching reminds me of a roller-coaster, which is more than fitting. When I'm all snuggled up it almost feels like I'm just hanging out in his room.

I think that all quilts tell a story and this one certainly doesn't lack in content as it was created from Cooper's t-shirts, onesies, socks, diaper covers, his bath towels, sheets, crib skirt, and even the dragonflies off of his baby mobile. Chris and Susan handled Cooper's things with such respect and care, and I was so touched by their genuine interest in his life. They have done a remarkable job! As I wrap myself up in memories so many different things seemingly jump off the quilt... of course there are the obvious things like where we went or what we experienced, but there are also things that no one else would know like how many different brands of shirts we had to try before finding one with a big enough neck hole to fit over his head! There's the mobile that I just had to have for Cooper's room which wouldn't you know, was backordered. It finally arrived in the mail two days before Cooper was born. All of these little things bring on the happy tears, laughter, the warm and fuzzies and memories that will forever be a part of us.

Chris and Susan blog about the stories behind the quilts they make. They recently posted more pictures and a bit about the creation that has become Cooper's Quilt.