Silent Night

This post was also shared as an article on Hello Grief

My mother gave me a ticket for tonight's Christmas Sing Along with the Symphony. This was her second year to sing with the choir and she was so excited. I was happy to go, excited about singing some old favorites and who knows, maybe it would help my Christmas spirit. The music was wonderful and the atmosphere inspiring. There were people of all ages singing, laughing. When the orchestra began to play "Frosty the Snowman" a person dressed as a Snowman came out into the audience. The kids went nuts, rushing down the isles to see him and parents were snapping pictures like crazy people, and then it hit me. It hit me that Cooper would be 3 1/2 years old at this very moment, just like the little ones clamoring to meet Frosty, just like the little boy sitting behind me saying "look mommy!" My throat started to get that hard to swallow feeling and the silent tears began to fall. I was never more thankful to move on to the next song, to see Frosty exit, and the children to return to their seats. During the next few numbers I was able to pull it together and enjoy the music - 12 Days of Christmas, Rudolph the Red Nosed Reindeer, a reading of The Night Before Christmas, Silent Night. Oh, Silent Night and here come the tears. I just can't control it. I have no control over my emotions and I fear I will not be able to sit through Silent Night anytime soon. It's not that I in any way compare my son to baby Jesus, it's just the soft, somber, reflective tone of the hymn and the first verse which stirs me up. Even as I type, my eyes well up. Again.

Silent night, holy night
All is calm and all is bright
Round yon virgin mother and child
Holy infant so tender and mild
Sleep in heavenly peace
Sleep in heavenly peace

At this moment, it reminds me of Cooper's passing and not the birth of Jesus. It scares me that I felt like I had pulled myself together for awhile and now, suddenly, it feels as if I'm falling apart all over again.

This would be the point where I reason with myself and try to balance my emotions with logic. The reality, yes, Cooper would have been 3 1/2, but not like the other children who were running around tonight. Cooper could not walk, or talk and he would not ever have had that ability. He had a progressive disease which does get worse over time, not better. Cooper died peacefully and I was ready to let him go, it was time, but that doesn't make me miss him any less. It's been one year, and I have to remind myself that it has ONLY been one year. There have been so many positive things that came from Cooper's life. I try so hard to focus on the good stuff and most of the time I feel like I do a pretty good job of it. Tonight is just one of those nights.

Last year my husband and I didn't "do" Christmas. We did put up the tree and our stockings, but we didn't go crazy with decorations. We didn't buy gifts or even go to either of our families homes. Instead, we both took some time off and put together a puzzle of the beach because it reminded us of our last trip with Cooper. I'm sure it sounds lame, but it was what worked for us. Christmas is a lot harder this year than I expected it to be. It's hard to be out there finding a way to be okay everyday. It's exhausting.

Sandscript

I love to write. It helps me release the adrenalin born with a new thought. I suppose writing in the sand has become my own variation of message in a bottle. I'm able to let it out and let it go.

The last trip we took with Cooper was to the beach in celebration of his second birthday. On the last day of our trip David, Cooper and I took pictures of our feet in the sand; our little family of three. We wrote Cooper's name in the sand and said goodbye to the beach. It was later that day when we arrived home, not yet unpacked, Cooper turned shades of blue all the way down to his belly button. He stopped breathing for five minutes. It was terrifying and we thought he had earned his wings at that very moment. I started to cry, holding him in the rocking chair with David kneeling beside us. Cooper took in a giant gasp and started to breathe again on his own. He stayed with us for eight more days. In a quiet moment of retreat, David, Cooper and I were swinging under the tree in our backyard. It was there that Cooper peacefully took his last breath.













Writing Cooper's name in the sand has stuck with me. Perhaps that day was a bridge connecting one chapter to another. Something we did only once together, yet a way to continue to remember. If I'm holding onto something, I feel like I can write it in the sand and let the waves literally wash it way. The waves, symbolic messengers that will carry my thoughts to the point where the water meets the sky.


I have been fortunate to visit the beach a few times since then, but never put the messages together until today.  By starting with Cooper's name it's much like the beginning of a letter, waiting to be written.

The Roller Coaster & the Theme Park

So many of us, parents of a child with progressive disease, refer to our daily existence as a roller coaster ride which given some thought, is very fitting - the constant ups and downs, unexpected twists and turns, sudden loops, dips, and maybe even a brief pause when you think that last drop had to have been the biggest only to learn that there is another and another and then it stops. It stops abruptly. It jolts you forward, slamming you into the safety harness, but your adrenaline is still pumping as you try to figure out which way is up. Your knuckles are white from holding on so tight. Someone releases the safety harness and although you don't know how, it happened none the less. You are free to go, but still you sit, dazed. There is a lot of confusion, clusters of people getting off and new people getting on. You slowly stand up, legs feeling like jello and heart racing. When you got on the ride, you knew it would end, but ride itself is a blur with random moments of clarity. You wonder where you're supposed to go now. Some follow the arrows, some ask for directions, and some seek out those who have who have been on the ride before. Somehow, we all end up corralled in the same gift shop looking at the pictures from each strategically placed camera. Our priceless expressions come into view on the monitor for all to see and a momentary glimpse of the ride has been capsulated in time.

And there it ends, right? The ride is over, the story has ended, but you realize that you're still at the theme park. When does this place close? Where is the exit? You consider the options; try again, try a different ride, maybe you find a park employee and let them know you are lost or just sit tight and wait until it's time to go.